by Carol Fragale Brill
Are you old
enough to remember the old Art Linkletter show, “Kids say the Darnedest Things?
It turns out, adults do too. Since sharing I have cancer, I have heard some
doozies. Maybe it’s that facing someone with an illness or disability unsettles
us to the point where we grope for words, or ramble and unintentionally blurt
out the not-so-empathetic thing.
Here are some
of the “darnedest” things I wish I could un-hear.
1.
Cancer
Stories with unhappy endings -
“My (fill in the blank; sister, mother, cousin, neighbor) just DIED from cancer.” Or even worse “Died from the same kind of cancer you have.”
I can’t tell you how many times, after hearing I have cancer, the first thing someone tells me is about someone that died. Most of us have at least
one personal story about someone who suffered an unpleasant cancer death.
Unless I ask you, this is
not a good time to remind me that people die from cancer. If you feel compelled
to share, make it a hopeful story about someone who beat the sucker and is cancer-free.
2.
Chemo
Horror Stories. “Do
you know how often after chemo, cancer returns with a vengeance?”
In what universe does a
person in the midst of chemo treatments need to hear cancer and vengeance in
the same sentence? The only thing the local store-owner who said this to me
accomplished is making me want to avoid him
and his store with a vengeance.
Before starting chemo, I
was freaked out enough about losing my hair, the possibility of nausea and
vomiting, and the long list of other potential side-effects shared by my doctor
without being bombarded with unsolicited real-life accounts of organ damage,
excruciating mouth sores, fingernails that turned black and fell off, or life-threatening
dehydration. There is only so much cancer and chemo horror I can take-in
without completely wigging-out. If I want to hear the gory details, trust that
when I’m ready I’ll ask you.
And for the record, my
experience with chemo isn’t nearly as nasty as those alarming stories. That’s
what I’d like someone embarking on their own chemo journey to hear.
3.
The
royal “We”. “We
will get through this,” “Just six chemo treatments? We can do that.”
On a recent episode of
Parenthood, I almost cheered out loud when a character who plays a cancer
survivor complained about how much “we” statements bugged her.
Not all “we” statements bother
me. I love to hear “we” when you mean you and someone else like, “we
are praying,” or “we want to help.”
I know my cancer causes
distress to those who care about me. I believe when you say “we” you mean you want
to be there and support me. Instead, what
I hear is you believe you’re experiencing the same thing as me--that you have as much
skin in this game as Jim and me.
“We” can wish it were different. The reality is this cancer is happening inside
only my body. That changes my life
and Jim’s in ways it doesn’t impact anyone else. There are parts of having
cancer I have no choice but to do alone—parts even Jim can’t do for me.
Melissa Etheridge, a
cancer survivor, says it poignantly in her beautiful song, “This is Not
Goodbye,”
Where I go now, I go alone.
This path I walk, these days of stone.
Before using the royal
“we” it might help to ask yourself, “How does her cancer change my day to day
life?” If you are doing pretty much what you always did, consider ditching the
“we.”
I know no one intends to upset
me when they say these darnedest things. Innocent or not, some remarks nearly
pushed me over the edge in the early weeks after my diagnosis when I was numb
and fragile—when it was nearly impossible for me to hear a sad cancer story and
not project the same thing happening to me. While I’m getting better at not agonizing
and melting down, there are still things that rattle my hope and that I’d
rather not hear.
This was a hard post for
me to write. I don’t know if others with cancer feel the way I do, so in spite
of the title, this post is about me with cancer, not we with
cancer.
Please share in comments and
help me better appreciate and understand the flip-side, What does hearing a
person has cancer—or any serious illness or disability—feel and sound like
to you?
And, follow this link to hear Melissa
Etheridge’s song, “This is Not Goodbye”
https://www.youtube.com/watch?v=ksihRX4kPtM